Im Sacred You Are Foing to Again
Sara14
Posts : 7087
Posted 2/13/2020 4:49 PM (GMT -6)
And so, last night while I was sitting on the couch watching Boob tube with my true cat, I suddenly felt like I was going to pass out. I then went to lie down on the couch for a few hours because I was really scared. It was like continual feeling of being virtually to laissez passer out, over and over. It felt improve if I lied downwardly and didn't move at all. It was a lot better after a few hours of lying down, merely I even so felt lightheaded if I got up and walked around. It was mostly better afterward sleeping, but I still felt a little featherbrained today. And so, about an 60 minutes ago, I walked upstairs and and then was dancing along to a funny scene from The Office and after a few seconds of dancing, I again felt similar I was going to pass out. I had to sit downwardly.
What is going on with me now?! I told my GI, because I am half wondering if my contempo weird health stuff (the migraine a month agone and now this) is due to the Humira, and he said he doesn't think information technology is from the Humira. He told me to run into my family unit doctor and to take my claret pressure if it happened again. I demand to purchase a claret pressure cuff,. My claret force per unit area was normal when terminal checked at my February. iii appointment and has always been normal. Information technology used to be on the low side of normal, but no one was ever concerned.
My UC is fine. I experience pretty much normal in that regard. I'm eating enough and well-hydrated. My meds are up-to-appointment in my signature.
Any thoughts?
ks1905
Posts : 6213
Posted 2/13/2020 half-dozen:45 PM (GMT -vi)
Do you have whatsoever sinus,
ear, or teeth issues going on?
If you call up that you're having a reaction to the Humira and so you could try some Benadryl but I'd be careful with that if yous're having a dehydration upshot.
Are you having any withdrawal issues from medications? I stopped drinking for a month and I got the worst headaches and low-cal headedness for the commencement week.
Sara14
Posts : 7087
Posted 2/13/2020 7:40 PM (GMT -6)
How-do-you-do Keith. Thanks for the respond. No ENT problems and I'1000 not dehydrated. I was taking Benadryl before this week to help me slumber (only one at bedtime), but didn't take ane final night after this started. Perhaps it does take zippo to exercise with the Humira.
I don't drink these days and oasis't recently stopped or started any meds. Good ideas though... Back in November, my iron was on the low side of normal. I didn't have anemia though. I started taking a multi with iron dorsum and so, but GI said not to take iron pills at that fourth dimension since they can be difficult on the gut.
I estimate I'll call my family unit doctor tomorrow. Mayhap they tin can at to the lowest degree society bloodwork and rule some things out.
quincy
Posts : 33223
Posted two/13/2020 viii:34 PM (GMT -6)
Information technology'southward possible sudden driblet in blood pressure or claret sugar...or...vestibular or visual/vestibular connection.
Visually....was there zooming in and out or weird music? And when you were dancing around, fast middle movement can screw with your brain/balance perception when moving.
I take BPPV and your symptoms could be perceived as familiar as what I've experienced at times.
Regarding atomic number 26...could be as well. Take B12 and iron checked. I use Ferrous Gluconate....no problems ever gut-wise. Stool is slightly darker when I take it.
Practise see your medico and have a proper work-upward. Allow us know how you're doing.
q
ambling
Posts : 1075
Posted 2/13/2020 eight:47 PM (GMT -6)
Every bit well as all the higher up...particularly blood pressure/aridity.... as well remember to breath lol. Deep slow breaths....
Hope it settles.
Sara14
Posts : 7087
Posted 2/13/2020 9:09 PM (GMT -6)
I was just dancing in place a piddling for literally like 3 seconds to a song in a Television show. It wasn't much motion at all, but yeah, information technology definitely did something. Merely concluding night when this all started, I was sitting down on the burrow, non moving at all. Well, I retrieve I was petting my cat, lol. And I had but finished eating a burrito.
I was nether a ton of stress yesterday and the night before (ex was contacting me), just when it first started, I had stepped away from my computer and phone and was not feeling stressed. I've had a lot of stress in my life and never experienced annihilation similar this, so I doubt that was the crusade, merely merely grasping at straws hither.
No weird visual stuff or sounds. What's BPPV?
Thank you both! Will let you know if/when I find anything out.
Sara14
Posts : 7087
Posted ii/13/2020 ten:07 PM (GMT -six)
Well, now my vision does seem kind of weird. And I felt nauseous for a flake. When I got the migraine, I was on my period and I'm on my menses again now. I'm just wondering if perchance there is some connectedness.
Posted 2/13/2020 eleven:38 PM (GMT -six)
Sara, I become migraines associated with my period. I'chiliad on the pill, and the migraine usually shows upward on Tuesday or Wed of the sugar pill week. Information technology started in my 20s and would happen every month, only at present in my 30s, I get them mayhap merely 3-four times a twelvemonth. Information technology is caused by a change in hormone levels. One thing you tin can do is keep a journal of when this happens -- what were you doing? whatever med changes? dehydration? did you do a lot of do that twenty-four hour period or the day before? period status? -- this is how I figured out they were related to my period. For a long while, I would put a low-dose estrogen patch on during the sugar pill calendar week and stopped getting them.
and yeah, I become weird vision and nausea when this happens.
Sara14
Posts : 7087
Posted 2/14/2020 2:49 AM (GMT -half-dozen)
Thanks. I don't have any pain right at present though (which I'm grateful for, lol!). I did have a headache yesterday before this hall started but I took some pain medicine and information technology went away. I experience okay right now after sleeping a while. We'll see what happens tomorrow. Going back to bed. Oh, and sorry to hear you become migraines!
Posted 2/14/2020 5:39 AM (GMT -6)
when i was suffering from an extreme fatigue, the only thing that helped me enormously was fish oil
Sara14
Posts : 7087
Posted 2/fourteen/2020 8:56 AM (GMT -six)
I feel better so far after sleeping. I approximate I'll see if it comes back once again later today. Thanks everyone.
Sara14
Posts : 7087
Posted 2/14/2020 ix:55 AM (GMT -6)
And at present the feeling is coming dorsum. And then it gets improve after I sleep, so I wouldn't think it would exist a claret sugar issue.
ks1905
Posts : 6213
Posted 2/xiv/2020 10:46 AM (GMT -6)
I'd go to the doctors' office considering this seems to be continuing and may be getting worse. Is it a reaction to a medication?
I would brand a listing for the doctor:
1) current medications (previous meds likewise)
2) symptoms
iii) times and events when this happened.
4) list of questions and things to discuss. BP, blood sugar, dehydration, infections, depression vitamin and mineral levels, and etc...
five) available tests and what you'd like washed.
This is kind of what I do when I am in a medical state of affairs like when I needed surgery, hospitalizations or was having serum sickness to anti-tnf meds. It helped me deal with the situation and besides showed the doc that I was taking this every bit serious as I could, this way they tin can not easily just dismiss things as lets wait and see. Make them explain everything that you are concerned most.
I take information technology i step farther and print out a copy of my sheet and give it to my md so we both go over it together. I take notes right on the printed list of questions.
Sara14
Posts : 7087
Posted 2/14/2020 12:22 PM (GMT -6)
Thank you, Keith! I'll exercise that. The soonest engagement I could make was next week Thursday morning. I might get to an urgent intendance walk-in place. I bought a claret pressure monitor and can't figure out how to work it. I read the directions and everything. I should have paid more for a digital one.
I started wondering if information technology could exist carbon monoxide poisoning because the airplane pilot light on my little propane fireplace went out a week or two ago and I tin can't go it re-lit. Turned the gas off to it belatedly last night simply in case. My CO2 detector hasn't gone off though and I was told by the gas company that those fireplaces don't leak fifty-fifty when the pilot lite goes out, then I doubt it is that.
ks1905
Posts : 6213
Posted ii/14/2020 1:57 PM (GMT -half dozen)
They sell o2 blood sensors too. The CO2 could definitely be an issue.
I bought a wifi enabled BP monitor, it connects correct to my iPhone and graphs it for me (I have high claret pressure). It's pretty easy to use. Peradventure watch a video or two nearly your bp monitor on Youtube.
Sara14
Posts : 7087
Posted 2/14/2020 2:13 PM (GMT -half dozen)
I figured out the blood pressure cuff. My dad texted me how to do information technology, haha. And so, it's actually not low. Information technology's actually slightly loftier for me! 140/75. Wow, a wifi-enabled BP monitor sounds very high-tech!
Maybe I'll look for the O2 sensor, or at least ask the doctor most that. Thanks again! The just thing that changed recently is increasing my Humira to weekly.
Sara14
Posts : 7087
Posted 2/xv/2020 eleven:47 AM (GMT -6)
My doctor'southward office told me to go to the ER and then I did. They found nil wrong. Really frustrating. I bet I'll owe a ton of coin for this too. All they constitute was very slightly depression potassium but she said information technology was nothing she was worried about. They are giving me potassium pills to take earlier I leave.
quincy
Posts : 33223
Posted two/15/2020 11:56 AM (GMT -6)
Wow...hope this gets resolved. Good yous got a bp cuff and so got checked out at the ER. Promise your doc does further testing on Thursday.
BPPV is this...
https://www.dizziness-and-balance.com/disorders/bppv/bppv.html
I've had it since age eleven, but information technology was more than the visual and positional head symptoms that I become reminded me of what y'all experienced...not a full out assail.
q
Sara14
Posts : 7087
Posted ii/fifteen/2020 1:56 PM (GMT -half-dozen)
Interesting, thanks. That doesn't really audio like what I have though. This started while not moving at all, just sitting on the couch. I know it happened once with the dancing though.
The ER nurse told me I had a UTI, but the doctor didn't mention it at all so I asked her and she said I didn't have one. Then the nurse came dorsum in and again said i had bacteria in my urinalysis but because I didn't mention UTI symptoms they would have to culture it and if it's positive I'll get a telephone call within 48-72 hours. Only yep, I've had a couple UTIs earlier and they hurt. I really don't think a UTI is causing my near-abiding low-level lightheadedness and intermittent feelings like I'thousand about to pass out.
They did bloodwork and an EKG. Hemoglobin was fine. Blood pressure level was just slightly high for me, simply I am on Uceris and haven't been exercising...128/82. At least I know my heart'southward fine, and I'm not virtually to die. Lol.
So if this is a medication side effect, would that be probable to show up in bloodwork or no?
BTW, potassium pills are HUGE horse pills. Thought I was gonna choke on those!
ER staff was groovy though, so at least information technology was as pleasant an experience as 1 can have in the ER.
countess18
Posts : 452
Posted 2/15/2020 ii:18 PM (GMT -half-dozen)
I had side effects to Humira that were unique. I had symptoms where I thought I was having a stroke ie. Dizziness and out of trunk type experiences. I besides had bad feet on the drug that was insane. Don't allow the doc presume information technology's not from the meds. My doc believed me and said people ha e reported a variety of symptoms. It is odd that You Never had them on humira earlier just perchance the increased dose???
Sara14
Posts : 7087
Posted 2/15/2020 2:34 PM (GMT -6)
Thank you for proverb that. Since the only thing that has changed is my Humira dose, information technology makes sense to me to exist the cause. Thursday night, in add-on to the feeling lightheaded/airheaded, I besides felt extremely out of it, like I was on drugs or something. This all started on a Wednesday night though and I've been doing my injections on Th afternoons. I don't know if that matters. Anyhow, I'm guessing Humira isn't going to work so I'll probably be off information technology soon. And if this continues, I may terminate it even sooner! I got dizzy afterwards my very outset Remicade infusion, but it didn't last more than than a couple hours and I never felt like I was about to laissez passer out. The ER doc well-nigh didn't seem to know what I was talking most, so I experience like perhaps this feeling like I'g well-nigh to laissez passer out and stopping myself matter isn't very common. I've never had that before now either, so I know it sounds kind of crazy. Anyway, I'm glad your doctor believed you and thanks for sharing that.
Sara14
Posts : 7087
Posted ii/fifteen/2020 2:36 PM (GMT -6)
countess -- Did yours beginning right afterwards yous started on Humira? What are you on now? Did it happen with any other biologics?
countess18
Posts : 452
Posted two/15/2020 seven:40 PM (GMT -six)
The bad anxiety kicked in about 3 months in and the weird featherbrained episodes around most 6 to 7 months in. I am on Remicade at present and do non have any side effects.
ks1905
Posts : 6213
Posted 2/xv/2020 viii:28 PM (GMT -6)
I hated Humira. I don't talk about the side effects that I had from Humira also much because I don't want to scare people from taking Humira but I had neurological problems from Humira while I was on information technology — I was tripping, dropping things and couldn't remember directly. I thought that I had MS. My GI said it was serum sickness and that information technology would get away after I stopped Humira, and it did go away.
I also had dry mouth and lots of itching while on Humira.
In fairness I had serum sickness from the other anti-tnfs that I was on (Remicade, Cimzia and Simponi) but it wasn't nearly as bad as Humira.
Sara14
Posts : 7087
Posted 2/xvi/2020 eight:49 AM (GMT -6)
I called the ER this morning because my online portal said my urine civilisation was complete, but didn't tell me the result. I judge it isn't complete, simply the woman I spoke to gave me some of my bodily results (the medico simply told me everything was fine and the nurse just told me I had bacteria in my urine that looked like a UTI, but they didn't give me any antibiotics). My urine test was a +ii (she told me +4 is a severe UTI just +2 is definitely a UTI then why wasn't I given antibiotics?). She also told me my WBC was elevated (13.four), which she said definitely signals an infection. I guess that could also be my UC, but information technology'due south pretty much under control on the Uceris correct at present. I woke up with UTI-similar hurting 2ish weeks ago only and then drank a ton of h2o and the pain never came back. I definitely want antibiotics if I have an infection and am on Humira though! Anyhow, she said the culture volition tell u.s. what blazon of antibiotics to use and when that comes back, the case director volition determine whether to put me on antibiotics. Regardless, I don't retrieve almost passing out and lightheadedness that lasts all day would exist from a UTI, but I still want that treated if I have an infection that'southward been lingering for weeks.
Keith -- That sounds horrible. Sad you had to go through that.
Countess -- OK, that makes me feel a bit better in the fact that this didn't first right when i started Humira.
The lightheadedness was not well-nigh every bit bad yesterday and Friday as information technology was Wednesday and Th, and today I oasis't had it yet. I've only been awake 45 minutes though. Lol.
Thanks for listening!!
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